I am still having button troubles. I now have the AMT Mini one balloon button and even though I like it a lot better than the Mic-Key I am still having problems with it.
The button/balloon is being pulled inside through my stomach contractions frequently and that makes me feel very desperate - for some reason too much pulling leads to nausea.
I have the 3.5 cm button right now and it does feel right, but I can still pull it out quite a bit in order to get the balloon to be really snug to the stoma - I have no idea if a size down would feel better - if that would help with the pulling of the button as well - I am just so sick and tired of feeling ill when I do get hungry. When the pulling in of the button starts I have about 10 minutes before I get nauseated - I don't always have time to eat right there and then - just because my stomach starts hurting with all those pulling sensations.
My gastroenterologist has never had a patient with a button before even though he has lots of g-tube patients. Neither has my dietician. I asked my gastro-doc last week if a non-balloon button would be better for me - if my stomach peristaltic would have less effect on a non-balloon button and therefore would feel better. He hadn't even heard about a non-balloon button before. I gave him all the information I had printed out from the AMT website but he didn't know if that would work better for me.
Lisa - from AMT - you once commented on one of my button trouble posts - do you have any insight on this?
I guess my specific questions are:
- is lots of pulling in still a sign of a too-long button
- would a non-balloon button work better for me
- is the internal bolster of a non-balloon button smaller than the balloon and therefore less likely to be pulled through my stomach peristaltic?
- is there a time-frame before a non-balloon button can be placed (my gastro-doc was worried that the smaller internal bolster would mean that more forces are exerted onto the stoma walls if I accidently pull on it (from the outside)?
If anyone has any answers - please comment or mail me at firstname.lastname@example.org - am a bit desperate.